Sick Kids Hospital

The nurses at Sick Kids. Say this to the parents of children who have had extended stays at the hospital, and you’ll hear a lot of the same words. Kind, dedicated, loving, family. Aside from their unbelievable knowledge and abilities, these are the qualities that make nurses so very special. And so under appreciated. These … Continue reading Sick Kids Hospital

The day my baby died – October 15, 2018

Our little Bean is gone. Killian died, fighting like hell, at 11:45 this morning. Dean and I were with him through the fight, and were able to hold him for his last few minutes. It all happened very quickly. We’ve been with him today, and just said our goodbyes. Thank you to every single person … Continue reading The day my baby died – October 15, 2018

October 14, 2018

Well, like I said before. This is a roller coaster. Killian took quite a turn early this am. He’s been in a fairly critical state since about 530 am. He was doing very well, until he wasn’t. He’s had to be put back on the ventilator as his breathing wasn’t doing well. His temperature and … Continue reading October 14, 2018

October 13, 2018 “Calm before the storm”

Our big man is off the ventilator! He did great. He’s being given a low flow of humidified air to help keep his poor airway happy. He’s being great though. Quiet and uneventful is a good thing. He’s still being given antibiotics to make sure any infection is being taken care of. They’re slowly starting … Continue reading October 13, 2018 “Calm before the storm”

October 13, 2018

We’ve had an eventful evening/night with Mr. Bean here. He was taken to the ICU to recover from his surgery. Unfortunately his body temperature and heart rate was continuing to drop. We were here for an “episode” where his heart rate was dropping into the 70s. It’s normally around 130. To see how quickly they … Continue reading October 13, 2018