Infant and child loss…I am 1 in 4.

When people look at me they see a lot. Some may thing I look nice. Some may think I look unapproachable and cold. Some may think I look like I have all my shit together. Some may think I look like a hot mess. Funny, crazy, confident, strange, friendly, cold. When you look at anyone, … Continue reading Infant and child loss…I am 1 in 4.

The day my baby died – October 15, 2018

Our little Bean is gone. Killian died, fighting like hell, at 11:45 this morning. Dean and I were with him through the fight, and were able to hold him for his last few minutes. It all happened very quickly. We’ve been with him today, and just said our goodbyes. Thank you to every single person … Continue reading The day my baby died – October 15, 2018

Celebrating a short life – October 29, 2018

Saturday was Killian’s celebration of life. The turnout was overwhelming, to say the least. The sheer amount of people who showed up to show support and to celebrate our little Bean was unbelievable. On top of that, I received so many kind messages from people who couldn’t make it, but were keeping us in their … Continue reading Celebrating a short life – October 29, 2018

October 12, 2018 “The Gtube”

Big day today. Killian goes in for his gtube surgery early this am. A gtube is a feeding tube they goes directly into his stomach. This will allow us to remove the ngtube which has been going through his nose, into his stomach, since he was born. I really struggled with agreeing to this surgery. … Continue reading October 12, 2018 “The Gtube”

October 9, 2018 “Sick Kids Hospital”

Morning all. Not much news for Mr. Bean (haha). He’s been desatting (the oxygen in his blood has been dipping lower than they like) all night, and his breathing is a bit faster than they like. So they’ll be keeping an eye on that. There’s a little girl who’s been beside us since we got … Continue reading October 9, 2018 “Sick Kids Hospital”