Going back to his home

Yesterday we went back. Back to the only place Killian ever lived. The place where I spent every moment with him. The place where he lived his short life. The place where he died.  Dean and I went back to Sick Kids. We went to see the people who spent his life with him. That … Continue reading Going back to his home

The day my baby died – October 15, 2018

Our little Bean is gone. Killian died, fighting like hell, at 11:45 this morning. Dean and I were with him through the fight, and were able to hold him for his last few minutes. It all happened very quickly. We’ve been with him today, and just said our goodbyes. Thank you to every single person … Continue reading The day my baby died – October 15, 2018

October 13, 2018 “Calm before the storm”

Our big man is off the ventilator! He did great. He’s being given a low flow of humidified air to help keep his poor airway happy. He’s being great though. Quiet and uneventful is a good thing. He’s still being given antibiotics to make sure any infection is being taken care of. They’re slowly starting … Continue reading October 13, 2018 “Calm before the storm”

October 13, 2018

We’ve had an eventful evening/night with Mr. Bean here. He was taken to the ICU to recover from his surgery. Unfortunately his body temperature and heart rate was continuing to drop. We were here for an “episode” where his heart rate was dropping into the 70s. It’s normally around 130. To see how quickly they … Continue reading October 13, 2018