October 20, 2018 “Getting back to normal”

Getting back to “normal” is a very odd thing. It’s been wonderful being back with my boys and my family. But our normal is definitely different now. There’s always going to be someone missing in these moments. That’s a tough thing to realize. We went to leisure farms today, and a little piece was definitely … Continue reading October 20, 2018 “Getting back to normal”

October 14, 2018

Well, like I said before. This is a roller coaster. Killian took quite a turn early this am. He’s been in a fairly critical state since about 530 am. He was doing very well, until he wasn’t. He’s had to be put back on the ventilator as his breathing wasn’t doing well. His temperature and … Continue reading October 14, 2018

October 13, 2018 “Calm before the storm”

Our big man is off the ventilator! He did great. He’s being given a low flow of humidified air to help keep his poor airway happy. He’s being great though. Quiet and uneventful is a good thing. He’s still being given antibiotics to make sure any infection is being taken care of. They’re slowly starting … Continue reading October 13, 2018 “Calm before the storm”

October 9, 2018 “Sick Kids Hospital”

Morning all. Not much news for Mr. Bean (haha). He’s been desatting (the oxygen in his blood has been dipping lower than they like) all night, and his breathing is a bit faster than they like. So they’ll be keeping an eye on that. There’s a little girl who’s been beside us since we got … Continue reading October 9, 2018 “Sick Kids Hospital”

October 7, 2018

Hey all. Hope you’re all enjoying your thanksgiving dinners!! Killian and I are snuggled up enjoying our evening. Big day in a funny way. I was able to take Killian for his first “walk” today. We can’t leave the floor, and I have to pull his IV pole with us, but either way it was … Continue reading October 7, 2018