October 13, 2018

We’ve had an eventful evening/night with Mr. Bean here. He was taken to the ICU to recover from his surgery. Unfortunately his body temperature and heart rate was continuing to drop.

We were here for an “episode” where his heart rate was dropping into the 70s. It’s normally around 130. To see how quickly they work around here is comforting, but it’s scary. It’s a scary thing to watch hoards of people rushing around your babe. In the span of about 10 minutes he has X-rays done (to make sure no damage was done during the procedure), lots of blood work and cultures done (to see if there’s an infection anywhere, check hemoglobin, check lactic acid etc etc), ventilator people were here, multiple nurses, nurse practitioner, Drs and fellows called. Scary stuff.

So far they don’t know exactly why he’s reacting the way he is, it could be something, it could be nothing. With his physiology his heart may just not handle stress well. So they decided to keep him intubated. He’s on a steady morphine drip to keep him still and keep his pain minimal. He had a blood transfusion done to give his body fresh, properly oxygenated blood, and he’s on antibiotics to try and fight anything that may be brewing.

They will try to get his ventilator out today for sure. They don’t like to keep them on it unless it’s completely necessary. Unfortunately they need to stop his morphine to be able to take it out as they need him alert and working to breath on his own.

So it’s been eventful to say the least. The machines are there to keep him alive, they don’t seem to bother me anymore. Watching him struggle against his breathing tube is really hard. He hasn’t eaten in 30 hours, he’s in some pain from surgery, and I’m sure he just doesn’t have a clue what’s going on.

Talk about a roller coaster ride. Some moments I’m completely fine, some i’m hanging on by a very thin wire.

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